/ Hippy Hippy Shake \

::VERY OVERDUE UPDATE::

I’m getting out of the habit of [over] apologizing for things I don’t need to. So instead of saying something like, “Sorry it’s taken a while… ” I’m going to say “Hey, thanks for your patience in getting this update posted”. It makes me more mindful of when a true apology is needed and encourages sincerity and authenticity from my end. But that is not what this post is about.

Winnie has still been puking with headaches. After a GI work up with endoscopy, genetics, and a Neuro work up & brain MRI, the good news is, there is nothing serious that we found! They diagnosed her with Cyclic Vomiting Syndrome which basically means they don’t know why it’s happening, but it’s not a brain tumor, celiacs, allergies, gastroenterological anatomical deformity, etc. We’re hoping she outgrows it.

As for me, I’ve been chugging along. I’ve been having an increase in Chiari symptoms the last few months. Increased head pain and pressure and radiating pain down my neck. Lots of vertigo and nausea. My dysautonomia has been more unstable. I need another upright MRI, but my new insurance company is terrible and it’s taking forever to get it approved. We are making progress though so I’m hopeful.

The bad news? I have another labral tear. My right hip this time. Last surgery on that one was 2015. When I had my consult with my new hip surgeon in May it was just to get established. He was hoping that I had enough scar tissue to prevent another tear and that my next issue would be eventual arthritis years from now that would lead to a hip replacement. I told him a few times that when my hips “go out” it is completely spontaneous and that I felt like I was going to get another tear sooner than later. He said “That would be unlikely.” Four weeks later it tore again 🙃

I have a follow up with him 8/5. In our initial consultation he did say I am beyond any more preservation and regardless, the next time I have an issue we will need to do a replacement. So I’m anticipating that will be the next step, but I will know for sure after my appointment with him. My spirits are mostly good despite the pain. Hope yours are too ✨

Pictured: Some of the many doctors appointments Winnie and I have gone to together over the last 6 months.

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