/ miss hips \

Over the past year or two I’ve been struggling, but pushing myself because the bills aren’t going to pay themselves (and I love my job). My body put an end to that (at least temporarily) this week.

Anona, my 6 year old, has been getting headaches this month. Headaches so bad they make her scream and vomit. Followed by her completely passing out. We took her to her pediatrician Tuesday to get her checked out. They said we need to follow up with neurology at CHOP, and we have an appointment next Tuesday.

As we were leaving her pediatrician, my left hip started to hurt…. bad. It’s a specific kind of pain I know too well as it is something I went through with my right hip four years ago. I have hip dysphasia (thanks EDS) and had a Femoral Acetabular Impingement, torn cartilage/labral tears, and cysts. The exact word they used to describe my cartilage damage was “macerated” 🤢 I needed a surgery called a Femoral Acetabular Osteoplasty. When they looked at my scans four years ago, they said my left hip had the same thing and it was only a matter of time before it “went”. They actually said what I need is a hip replacement but I’m way too young for one. So the osteoplasty is a form of joint preservation, basically to buy me time until I’m a more appropriate age for a hip replacement. By the end of this past Tuesday, I couldn’t walk.

This hip stuff is finicky as it ranges from day to day. For example, with ample rest I might be able to be functional the following day with mild to moderate hip pain. But if I push it even a little, then by the end of the day the pain is so severe I can’t bear weight on it. I’m a bedside nurse. The two aren’t compatible.

So, on top of kids, leaking roofs, chimney repairs, electrical problems, and going to my own doctor appointments, I’m facing a decent amount of time I won’t be able to work (or walk). What I need is like 4 months where I can get my hip surgery and the wrist surgery that I need, put Humpty Dumpty back together again, and then hopefully get back to work. I’m not sure how we’ll manage that time off financially, but we’ll figure it out.

Thanks to those who have shown up for me in this time. It’s deeply appreciated ♥️

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