I met with the neurosurgeon today. Lots of thoughts and feelings but I’ll give the highlights.
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The good news is, all my internal skull/brain measurements are stable. The MRI shows no instability other than an increased basion dens interval. I do however have C1-C2 instability and C5-C6 instability. My measurements are borderline surgical, but he says with my case, he’s hoping a few months in a cervical collar (as much as I can) will help stabilize the joints and vessels and relieve some symptoms. I currently can’t wear it at work or while driving, so I’ll wear it at home mostly for now.
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He also said, given my autoimmune history and other symptoms, he wants me to see an immunologist, a gastroenterologist, and I need to follow up with a proper endocrinologist for my Hashimotos disease.
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He was one of the kindest doctors I’ve met. He was thorough, took his time with me, and answered all my questions. He also ran out and got a box of tissues when I unexpectedly started crying (that’s for another post). I’m exhausted, especially at the thought of seeing more doctors. But overall, it’s movement in the right direction.
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Also, fun fact, I have no gag reflex 🥳
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