/ Feeling Seen \

I finally got my upright MRI. Im happy to be moving forward and also nervous about results. I’ll get the report and have my neurosurgery consultation on Monday. My headaches and pressure have felt more intense these past few weeks. The weather has been crazy too and I feel like that tends to make it worse.

The technician was so nice and works with people who have my conditions all the time. When he asked about symptoms, I was hesitant because there’s so many. Then he just said “Wait, do you have EDS, Chiari, POTS and CCI?” And I could just answer “Yes!” …And I didn’t need to say anything more. I’ll seriously travel anywhere just to feel seen and known through this crazy journey 😌

.

.

.

#ehlersdanlossyndrome #EDS #zebrastrong #POTS #MCAS #mastcellactivationsyndrome #craniocervicalinstability #CCI #dysautonomia #hashimotos #chronicillness #spoonies #alopecia #alopeciauniversalis #thespooniesisterhood #kidsandchronicillness #chronicpainwarrior #chronicillnesswarrior #chronicfatiguesyndrome #CFS #ME #chiarimalformation #butyoudontlooksick #invisibleillness #chronicpainawareness #chronicpain

Leave a comment

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: